The Importance of Management Family-Centered Care Model in Stroke Recovery : A Comprehensive Examination

Main Article Content

Windri Dewi Ayu
Halimatusyadiah
Ahmad Jaelani

Abstract

Stroke is a substantial health issue that affects numerous individuals and their families. Stroke survivors and their carers sometimes face difficulties when transitioning from the hospital to their home. Implementing a family-centered care approach throughout rehabilitation is crucial for properly addressing the needs of both parties. Although advantageous, this strategy may give more importance to the worries of family members rather than those of the stroke survivors themselves. The objective of this study was to assess the efficacy of a family-centered care approach in stroke rehabilitation by an analysis of existing research literature and the examination of outcomes. This integrated literature study employs a methodology that investigates databases like Scopus, PubMed, Researchgate, and Google Scholar across several nations such as the United States, Canada, Australia, England, South Korea, the Netherlands, Japan, and others. The results indicated that implementing a family-centered care approach in stroke therapy yielded significant enhancements in the Both groups' physical and mental well-being. The existing body of research suggests that the involvement of family members in the provision of care and support for individuals who have experienced a stroke leads to enhanced outcomes in relation to physical functioning, psychological well-being, and overall quality of life. In stroke rehabilitation, the implementation of a family-centered care approach ultimately leads to favorable outcomes for both stroke patients and their caregivers. Future research should place emphasis on the discovery of specific strategies for effective implementation and the evaluation of the long-term effects of these approaches on persons who have suffered a stroke and their family members.

Article Details

How to Cite
Ayu, W. D., Halimatusyadiah, H., & Jaelani, A. (2025). The Importance of Management Family-Centered Care Model in Stroke Recovery : A Comprehensive Examination . JURNAL KESEHATAN STIKes MUHAMMADIYAH CIAMIS, 12(1), 37–57. https://doi.org/10.52221/jurkes.v12i1.783
Section
Articles

References

Araújo, É., Viana, R., Teixeira-Salmela, L., Lima, L., & Faria, C. (2019). Self-rated health after stroke: a systematic review of the literature. BMC Neurology, 19(1). https://doi.org/10.1186/s12883-019-1448-6

Bergström, A., Koch, L., Andersson, M., Tham, K., & Eriksson, G. (2015). Participation in everyday life and life satisfaction in persons with stroke and their caregivers 3–6 months after onset. Journal of Rehabilitation Medicine, 47(6), 508-515. https://doi.org/10.2340/16501977-1964

Blanton, S., Dunbar, S., & Clark, P. (2018). Content validity and satisfaction with a caregiver-integrated web-based rehabilitation intervention for persons with stroke. Topics in Stroke Rehabilitation, 25(3), 168-173. https://doi.org/10.1080/10749357.2017.1419618

Brewster, G., Bonds, K., McLennon, S., Moss, K., Epps, F., & Lopez, R. (2020). Missing the mark: the complexity of african american dementia family caregiving. Journal of Family Nursing, 26(4), 294-301. https://doi.org/10.1177/1074840720945329

Cameron, J. (2021). Family caregiving research: reflecting on the past to inform the future. Journal of Spinal Cord Medicine, 44(sup1), S19-S22. https://doi.org/10.1080/10790268.2021.1970883

Camicia, M., Lutz, B., Markoff, N., & Catlin, A. (2018). Determining the needs of family caregivers of stroke patients during inpatient rehabilitation using interview, art, and survey. Rehabilitation Nursing, 44(6), 328-337. https://doi.org/10.1097/rnj.0000000000000129

Camicia, M., Lutz, B., Markoff, N., & Catlin, A. (2018). Determining the needs of family caregivers of stroke patients during inpatient rehabilitation using interview, art, and survey. Rehabilitation Nursing, 44(6), 328-337. https://doi.org/10.1097/rnj.0000000000000129

Creasy, K., Lutz, , Young, M., & Stacciarini, J. (2015). Clinical implications of family-centered care in stroke rehabilitation. Rehabilitation Nursing, 40(6), 349-359. https://doi.org/10.1002/rnj.188

Duncan, P., Bushnell, C., Sissine, M., Coleman, S., Lutz, B., Johnson, A., … & Stein, J. (2021). Comprehensive stroke care and outcomes. Stroke, 52(1), 385-393. https://doi.org/10.1161/strokeaha.120.029678

Felten-Barentsz, K. M., Valk, M. J. v. d., Pelgrim, T., Hoeven, J. G. v. d., Schoonhoven, L., Ebben, R., … & Vloet, L. (2023). Family participation in essential care activities in adult intensive care units: an integrative review of interventions and outcomes. Journal of Clinical Nursing, 32(17-18), 5904-5922. https://doi.org/10.1111/jocn.16714

Hsu, Y., Lee, T., Chung, K., & Tung, Y. (2023). Determining the factors influencing the selection of post-acute care models by patients and their families: a qualitative content analysis. BMC Geriatrics, 23(1). https://doi.org/10.1186/s12877-023-03889-z

Izadi-Avanji, F., Amini, A., Ajorpaz, N., & Akbari, H. (2020). The effect of a family-centered empowerment model on the quality of life of patients with stroke. Journal of Client-Centered Nursing Care, 13-22. https://doi.org/10.32598/jccnc.6.1.293.4

Jenkin, T., Anderson, V., D’Cruz, K., Scheinberg, A., & Knight, S. (2022). Family-centred service in paediatric acquired brain injury rehabilitation: bridging the gaps. Frontiers in Rehabilitation Sciences, 3. https://doi.org/10.3389/fresc.2022.1085967

Johansson, U., Nilsson, A., Falkdal, A., Koch, L., Hellman, T., & Eriksson, G. (2021). The delivery of the rework-stroke program: a process evaluation. Work, 70(2), 467-478. https://doi.org/10.3233/wor-213585

Kernan, W., Viera, A., Billinger, S., Bravata, D., Stark, S., Kasner, S., … & Biology, V. (2021). Primary care of adult patients after stroke: a scientific statement from the american heart association/american stroke association. Stroke, 52(9). https://doi.org/10.1161/str.0000000000000382

Krishnan, S., Hay, C., Pappadis, M., Deutsch, A., & Reistetter, T. (2019). Stroke survivors' perspectives on post–acute rehabilitation options, goals, satisfaction, and transition to home. Journal of Neurologic Physical Therapy, 43(3), 160-167. https://doi.org/10.1097/npt.0000000000000281

Liao, Z. (2024). Biographical continuation: recovery of stroke survivors and their family caregivers in taiwan. Primary Health Care Research & Development, 25. https://doi.org/10.1017/s1463423623000610

Lin, Y., Zhou, Y., & Chen, C. (2023). Interventions and practices using comfort theory of kolcaba to promote adults’ comfort: an evidence and gap map protocol of international effectiveness studies. Systematic Reviews, 12(1). https://doi.org/10.1186/s13643-023-02202-8

Liu, H., Lindley, R., Alim, M., Felix, C., Gandhi, D., Verma, S., … & Jan, S. (2018). Family-led rehabilitation in india (attend)—findings from the process evaluation of a randomized controlled trial. International Journal of Stroke, 14(1), 53-60. https://doi.org/10.1177/1747493018790076

Lobo, E., Frølich, A., Abdelrazek, M., Rasmussen, L., Grundy, J., Livingston, P., … & Kensing, F. (2023). Information, involvement, self-care and support—the needs of caregivers of people with stroke: a grounded theory approach. Plos One, 18(1), e0281198. https://doi.org/10.1371/journal.pone.0281198

Lou, V., Tang, J., Lau, K., Lum, T., Fong, K., Ko, R., … & Kwok, T. (2021). Effectiveness of a two-tier family-oriented intervention in enhancing the family functioning and care capacity of the family caregivers of stroke survivors: protocol for a randomized controlled trial. Jmir Research Protocols, 10(5), e16703. https://doi.org/10.2196/16703

Lutz, B. and Young, M. (2010). Rethinking intervention strategies in stroke family caregiving. Rehabilitation Nursing, 35(4), 152-160. https://doi.org/10.1002/j.2048-7940.2010.tb00041.x

Moradian, S. (2018). Family-centered care: an evolutionary concept analysis. International Journal of Medical Reviews, 5(2), 82-86. https://doi.org/10.29252/ijmr-050207

Moradian, S. (2018). Family-centered care: an evolutionary concept analysis. International Journal of Medical Reviews, 5(2), 82-86. https://doi.org/10.29252/ijmr-050207

Mou, H., Lam, S., & Chien, W. (2022). Effects of a family-focused dyadic psychoeducational intervention for stroke survivors and their family caregivers: a pilot study. BMC Nursing, 21(1). https://doi.org/10.1186/s12912-022-01145-0

Murakami, T., Higuchi, Y., Ueda, T., Kozuki, W., & Gen, A. (2022). Internet-based information sharing with families of patients with stroke in a rehabilitation hospital during the covid-19 pandemic: case-control study. Jmir Rehabilitation and Assistive Technologies, 9(3), e38489. https://doi.org/10.2196/38489

Nurapandi, A., Supriadi, D., Rahman, I., & Nopiyanti, R. (2024). The Influence of Family Support on Stroke Patient Compliance in Treatment at Blud RSU Ciamis. JURNAL KESEHATAN STIKes MUHAMMADIYAH CIAMIS, 11(2), 78-83.

Nurapandi, A., Rahman, I. A., Miranda, A., Firdaus, N. R., Yulianasari, G., & Marliany, H. (2025). THE Effect Of Visual Media Education On The Level Of Knowledge Of The Elderly About The Prevention Of Hypertension. HealthCare Nursing Journal, 7(1), 21-27.

Naderipor, A., Faramarzi, H., Jalali, A., Salari, N., & Rezaei, J. (2020). The effects of family based care program on the health status of hemiplegic patients with stroke: a randomized control trial.. https://doi.org/10.21203/rs.2.23483/v1

Nayeri, N., Mohammadi, S., Razi, S., & Kazemnejad, A. (2014). Investigating the effects of a family-centered care program on stroke patients‘ adherence to their therapeutic regimens. Contemporary Nurse, 3268-3282. https://doi.org/10.5172/conu.2014.3268

Ariyadi, R., Ruhimat, U., Gantina, H. T. S., & Firdaus, N. R. (2024). Identifikasi Nematoda Usus Pada Balita Stunting di Wilayah Kerja Puskesmas Baregbeg. INDOGENIUS, 3(3), 177-181.

Nordin, N., Aziz, N., Aziz, A., Singh, D., Othman, N., Sulong, S., … & Aljunid, S. (2014). Exploring views on long term rehabilitation for people with stroke in a developing country: findings from focus group discussions. BMC Health Services Research, 14(1). https://doi.org/10.1186/1472-6963-14-118

Osawa, A. and Maeshima, S. (2010). Family participation can improve unilateral spatial neglect in patients with acute right hemispheric stroke. European Neurology, 63(3), 170-175. https://doi.org/10.1159/000286517

Pandian, J. and Sudhan, P. (2013). Stroke epidemiology and stroke care services in india. Journal of Stroke, 15(3), 128. https://doi.org/10.5853/jos.2013.15.3.128

Piravej, K., Konjen, N., Cowintaveewat, V., Kuptniratsaikul, V., & Kuptniratsaikul, P. (2014). Early interdisciplinary intensive rehabilitation significantly improves the quality of life of stroke survivors: a multi-center study. Asian Biomedicine, 8(1), 87-95. https://doi.org/10.5372/1905-7415.0801.266

Ritsma, B., Gariscsak, P., Vyas, A., Chan-Nguyen, S., & Appireddy, R. (2022). The virtual family conference in stroke rehabilitation: education, preparation, and transition planning. Clinical Rehabilitation, 37(8), 1099-1110. https://doi.org/10.1177/02692155221146448

Singarimbun, R. (2023). Relationship between family health behavior with improving patient functional capacity post stroke in the dwikora area. Journal of Advances in Medicine and Pharmaceutical Sciences, 2(1), 14-18. https://doi.org/10.36079/lamintang.jamaps-0201.496

Tyagi, S., Koh, G., Luo, N., Tan, K., Hoenig, H., Matchar, D., … & Tan, C. (2020). Dyadic approach to supervised community rehabilitation participation in an asian setting post-stroke: exploring the role of caregiver and patient characteristics in a prospective cohort study. BMJ Open, 10(4), e036631. https://doi.org/10.1136/bmjopen-2019-036631

Utami, K., Fauziyah, A., & Rahim, A. (2023). The relationship between family involvement in physiotherapy home programs and activity daily living in post-stroke patients. Kne Medicine. https://doi.org/10.18502/kme.v3i2.13045

Veen, D., Jellema, S., Wees, P., Graff, M., Swart, B., & Steultjens, E. (2022). Enhancing the role of the social network in activity (re)engagement post-stroke: a focus group study with rehabilitation professionals. BMC Primary Care, 23(1). https://doi.org/10.1186/s12875-022-01897-3

Vincent-Onabajo, G., Gayus, P., Masta, M., Ali, M., Gujba, F., Modu, A., … & Hassan, S. (2018). Caregiving appraisal by family caregivers of stroke survivors in nigeria. Journal of Caring Sciences, 7(4), 183-188. https://doi.org/10.15171/jcs.2018.028

Zamicia, M., Lutz, B., Markoff, N., & Catlin, A. (2018). Determining the needs of family caregivers of stroke patients during inpatient rehabilitation using interview, art, and survey. Rehabilitation Nursing, 44(6), 328-337. https://doi.org/10.1097/rnj.0000000000000129